Science Daily: In U.S. First, Surgeons Implant Brain ‘Pacemaker’ for Alzheimer’s Disease

Ed. note: My dad had this surgery for Parkinson’s disease seven years ago. I’m glad they now offer it for Alzheimer’s!

ScienceDaily (Dec. 5, 2012) — Researchers at Johns Hopkins Medicine in November surgically implanted a pacemaker-like device into the brain of a patient in the early stages of Alzheimer’s disease, the first such operation in the United States. The device, which provides deep brain stimulation and has been used in thousands of people with Parkinson’s disease, is seen as a possible means of boosting memory and reversing cognitive decline.

Read more in Science Daily.

11-Year-Old Girl Fights To Find A Cure For Her Parents Diseases

Lauren Blum. Image via ABC 3/WinchesterAs many of you know, my father has Parkinson’s disease. He was diagnosed in his mid-to-late 50s.

I’ll NEVER forget the look on his face when he first told me he thought he had it. By that time, I’m pretty sure he had seen a doctor. We were eating lunch at the kitchen table and he looked at me and said his arm was trembling and he thought he might have something. I was CRUSHED but, as is my style, I showed little emotion and said, “No, you’re not sick. You’re fine. Maybe you just need to rest more.”

I didn’t want to believe it and, most of all, I wanted to aleve his fears.

He looked scared. And embarrassed. And he was right. He was soon thereafter officially diagnosed.

My dad was a very active man. He always worked two jobs. He loved to ride his ten speed bike (cycled competitively in his native Colombia) and lifted weights. Slowly, his ability to do all that would leave him. Today he spends most of his time watching soccer on TV in his bedroom.

Parkinson’s is a like a slow moving physical prison. It sucks. I wish there were a cure.

Research helps. My dad had deep brain stimulation surgery about seven years ago. While it has slowed the disease, and we are grateful for that, I read up on Parkinson’s news daily, hoping there will be a breakthrough.

Eleven year old Lauren Blum of the Winchester-area in Virginia is raising money for research– not only for Parkinson’s, which her dad has, but also for multiple sclerosis, which her mom has. The feeling of having an ill parent is hard to describe. It must be harder for someone so young! This story made me smile because of her positive attitude.

Check it out:

“Half of the money I raise goes to Multiple Sclerosis and the other half goes to Parkinson’s” says Blum. She was only a baby when her parents were diagnosed with their diseases.

“I always used to worry about were they going to die and what is going to happen. You could never really know what’s going to happen with these diseases except they can’t die. When I was younger, I didn’t understand that.”

See the video segment via ABC 3/Winchester here.

Lyrics: ‘Keepsake’ by Gaslight Anthem

Photo via AUX.tv

I’m very fortunate to have grown up with both parents. I didn’t always see it that way. As a kid, I can remember sometimes wishing they’d divorce when they fought because I hated arguments and I figured I’d be allowed to hang out with friends more that way! (They were strict about letting me go anywhere without my brothers.)

I feel guilty for even thinking that way. But I was young and naive. I definitely cherish having them both together and around to this day.

I’m going to assume Gaslight Anthem’s Brian Fallon grew up, in part, without his dad. The lyrics to Keepsake give me goosebumps:

It’s been thirty-one years
Since she’s been in your arms
But don’t worry about Mama
Mama’s got a good heart

And I’m not looking for your love
I’m only sniffing out blood
Just a little taste of where I came from

And at the bottom of this river
Is where I put you down to lay
So I can live with it
And in my heart there are these waters
Where I put you down to lay
While I learn to live with it
Until I’m free

And it’s been all my life
I’ve been wondering on the inside
What we could’ve had
If you’d had a part in my life

Buy the album, read the rest of the lyrics or just listen to the song, here. And in this interview with AOL Spinner, Fallon discusses honesty in his songwriting.

Upcoming in NYC: Young Moms Conference on Sept. 8

Northern Manhattan will be home to the very first “Young Moms Conference” this September. The event is being organized by Carolina PIchardo, one of the cofounders of Young Urban Moms (YUM), a blog devoted to young mothers in the NYC area.

I asked Pichardo to tell me how this conference came about.

A young mom herself, Pichardo said she always wanted to display a side of young mothers that has never been demonstrated before. She also wanted to provide a place for young moms to get together.

“YUM, the site, has always the main vehicle, but I know that every once in a while we need to step out from behind our screens and desks and whatever other lofty little places we currently are now and help those that need the real hand-holding,” Pichardo said. “This is that ‘Girl-to-Girl’ conference. Our goal is to make it real, to make it friendly and open, like so many of us. We are a community and we’re here to show it.”

A keynote speaker is expected to be announced in coming weeks.

Other things to expect at the conference are workshops on various family topics presented by area organizations; wellness tips and panels by The SPEACH and Healthy Kids in the Heights; and sessions with A Young Mother’s D.R.E.A.M, a nonprofit whose mission is to assist young/teen moms in completing their education through a one-on-one mentorship program.

And, by the way, according to YUM, there isn’t a strict age limit on who qualifies as a “young mom.” So if you can relate to the topics on their site, you’re a young mom. End of story.

Here are the need-to-know details:

Date: Saturday, September 8th
Time: 1 to 5 p.m.
Location: 3940 Broadway, New York, NY 10032

You must register in advance. Visit the YUM site for information on how to register and to learn about the conference cosponsors.

Ondatropica at Lincoln Center ‘Out of Doors’

Photo by Gina Vergel

Ondatrópica made its US debut at the Lincoln Center Out Of Doors Festival on July 27 and it was awesome, mostly because I was able to shoot photos right up front. Read Jon Pareles’ (New York Times) review of the show here.

This all-star band featured greats from the golden age of Colombian music including Michi Sarmiento, Alfredito Linares, Pedro Ramayá Beltran, Markitos Micolta and Wilson Vivero, alongside the two musicians who started this wonderful project, Will ‘Quantic’ Holland and Mario Galeano with their bands, Combo Barbaro and Frente Cumbiero.

I got to meet the very humble Quantic as he was manning the merchandise table, where I purchased the band’s self-titled debut album. I told him that his “Original Sound of Original Cumbia” and “Cartagena!” CDs mean a lot to me because my dad loves them and they help to transport him back to Colombia at a time when it’s not easy for him to visit his beloved home country.

My dad has had Parkinson’s disease for more than 10 years now and is quite immobile. He is the person who introduced my brothers and I to Colombian music as he’d blast his records every Saturday when we were growing up. It’s why my younger brother started DJing at 14. It’s why my older brother and I are insane fans of la musica de la costa. It’s why this music is in our blood.

One of the things my dad misses most in life is dancing to the wonderful music from his home country. So I was very happy to tell Quantic his CDs are on REPEAT at my parents’ home in New Jersey. He can’t quite dance; but he sure can bop to it and occasionally digs out his maracas when doing so.

Now my dad will have the opportunity to experience this new Colombian sound. Ondatrópica fuses old with new to create a progressive sound which mixes traditional Colombian styles such as cumbia, gaita and champeta with boogaloo, ska, beat-box, MCs, dub and funk. And we were quite blown away when they played a song with bits of Black Sabbath’s “Iron Man” in it!

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